Bad memories and a call to action on health care

One year ago today I was battling an ear infection that turned bad enough to put me in the hospital for a week.

What I went through then was among the worst experiences of my life. Yet looking back on the experience, I realize how lucky I was.

I was diagnosed early enough to avoid life-threatening complications.

Before I was sick enough to require hospitalization, I had multiple x-rays, a doppler scan and an MRI. Shortly after I was admitted, I had more x-rays and a CT-scan. If I had delayed seeking medical care for another day or two, my systemic strep infection might have spread to joints or internal organs, which would have required many weeks of intravenous antibiotics. The infection might even have become life-threatening.

More and more Americans hold off on seeing a doctor in order to save money. The problem isn't limited to the uninsured either. Even laboratory testing companies are feeling a pinch because of this trend.

My doctor referred me to the top infectious disease specialist in my area.

Since my hospitalization, I've told my story to many doctors. Quite a few have remarked that they are glad I was under the care of that particular infectious disease doctor. Never having had a serious infection before, I could not have known whom to request. Without the medical insurance that pays for my routine annual physicals, I would not have had a relationship with the doctor who looked out for me and got me on the caseload of the best specialist.

The bacteria that made me sick responded to antibiotics.

The ID doc put me on three "heavy-hitter" IV antibiotics at first, but two days later when my ear culture came back as strep A, she switched me to "good old-fashioned penicillin," which did the trick. I also didn't pick up any secondary infections in the hospital. It helped that I only had one IV port. Again, if I had delayed seeking medical care until the situation was more critical, I might have ended up in the intensive care unit with more tubes going into my body and more opportunities for infection.

Drug-resistant bacteria are a growing problem on hospital wards, thanks to the overuse of antibiotics in humans and livestock. I know someone who acquired a drug-resistant staph infection after giving birth, and it almost killed her.

Veering off-topic for a moment, one of my pet peeves is when people claim not to believe in evolution. I always want to ask them, "Do you believe bacteria can sometimes become resistant to antibiotics? Because if you do, you believe in natural selection."

Getting back to my good fortune a year ago, my period of intense pain was limited.

I'll never forget how painful cellulitis was, but by the time I was discharged from the hospital, extra-strength ibuprofen was sufficient to manage the pain. Within six weeks the pain in my leg was gone, and I was able to go back to my usual exercise routine. Some people live with chronic, severe pain indefinitely, lacking insurance coverage or the means to pay out of pocket for pain-killers. If they are very lucky, a friend might help them pay for the prescription they need.

I suffered no lasting damage to my health.

The ear, nose and throat doc had warned me that I could have permanent hearing loss in the affected ear, but the ruptured eardrum healed up just fine. He also told me that on the rare occasions when he or his colleagues had seen an ear infection go really bad, it usually caused meningitis or facial paralysis. I'll take cellulitis of the leg any day.

My illness didn't leave me in financial ruin.

When I first blogged about my illness last year, some commenters warned me that I should be prepared for gargantuan bills or a huge battle with my insurer. As it turned out, my insurer covered almost all of the expenses. I never did figure out exactly how much the illness cost, because bills and statements were still arriving months later (almost never itemized). We were so relieved the day we got the biggest bill, for $18,000, and our portion was only $600. I recognize that paying $600 would be a hardship for many families, but we were fortunate to be able to settle that bill that without cutting back on any essentials.

Medical problems are a leading cause of bankruptcies in the U.S. and create incalculable stress and hardship even for families who do not go bankrupt. Last year the uncovered expenses from AdmiralNaismith's wife's embolism totaled more than he earns in three months.

Although I have long supported health care reform, my experience last year gave me a new sense of urgency about this issue. I benefited from "the best health care in the world," but so many of my neighbors would have fared worse had they suffered the same kind of infection.

My greatest wish for President Barack Obama and his Secretary of Health and Human Services, whoever that turns out to be, is that they will not "pre-compromise" and start negotiations with a health care package they think Congress will accept.

It may be too much to hope that Obama would get behind the best fix for our broken system, but he should aim very high.

Republicans' pride in their near-unanimous opposition to the stimulus bill should dissuade the president from moving even a millimeter in their direction when the debate begins on health care. They want to build a comeback on Obama's failure and will do nothing to help him succeed.

As for the Congressional Democrats who stand in the way of the change we need, I hope Obama will use the bully pulpit to shame them into action. Recent opinion polls on health care have shown huge dissatisfaction with the status quo and growing support for government-run, guaranteed health care. Lyndon Johnson pushed members of Congress further than they were initially willing to go on some issues, notably civil rights. Obama's approval ratings are high, and what better way to spend his political capital than to deliver on universal health care?

This thread is for any insight about the substance of health care reform or the best political strategy for doing it right.

Tags: Barack Obama, Congress, Health care, health care reform, health insurance, HR 676, medicare for all, Personal, single-payer health care, universal health care (all tags)

Comments

4 Comments

Believing in evolution.
Doonesbury
Patient: TB! My God! Are you sure?
Doctor: Afraid so. But we caught it early.
Patient: So my prognosis is good?
Doctor: Depends. Are you a creationist?
...
Go read the rest.
by Jeff Wegerson 2009-02-23 05:33AM | 0 recs
that's a good one

Hadn't see that one before--thanks.

by desmoinesdem 2009-02-23 05:37AM | 0 recs
Don't hold your breath....

http://www.counterpunch.com/redmond02232 009.html

February 23, 2009

Kennedy and the Corporate Lobbyists Craft a Business-Friendly Health Plan
Ted's Table
By HELEN REDMOND

So now we know where Senator Edward Kennedy has been in between treatments for his cancerous brain tumor and recuperating at his compound in Hyannisport, or at his other home in Florida. He's been in secret, invitation only meetings with lobbyists from: Aetna, America's Health Insurance Plans (AHIP), the Business Roundtable, the United States Chamber of Commerce, and the Pharmaceutical Research and Manufacturers of America (PHRMA).

Apparently, Mr. Kennedy doesn't give a rat's ass about President Obama's promise of transparency and limiting the influence of corporate lobbyists in his administration. Mr. Obama is aware of these secret meetings with lobbyists but so far hasn't expressed any concern or disapproval.

Kennedy has been sitting at a table chatting with the corporate killers  responsible for the deaths of between 18,000 to 100,000 people every year because they lacked access to health care, and moreover, are the cause of the escalating health care crisis that leaves over 50 million without health insurance. Ted is joined at the table by another group: the American Cancer Society, Easter Seals, the American Association of Retired Persons (AARP), the American Medical Association (AMA), and the A.F.L.-C.I.O. Their presence at these clandestine gatherings is beyond shameful; it's despicable.  They are supposed to represent patients and union members. How do they do it? How do they sit at the table and negotiate with an industry that has demonstrated for decades it cares only about profits and has made life for millions of people an agonizing, living hell? How many patients will they sacrifice and throw under the bus this time around in order to placate big PHRMA, AHIP, and employers and then tell us once again they have solved the health care crisis?

Did you notice who is missing from the table: the California Nurses Association (CNA), the Physicians for a National Health Program (PNHP), and the grassroots, national organization Health Care Now! These groups want a single-payer, government financed health care system. Kennedy hasn't invited these organizations to his top secret brainstorming sessions (by the way, they represent the views of the majority of people in this country) because single-payer is off his table.

The coward from Cape Cod is colluding once again with the same corporations to block single-payer, guaranteed health care for all. Mr. Kennedy has said many times that reforming the health care system has been "the cause of my life." By any measure he has failed spectacularly. One statistic stands out: over 50 million Americans are uninsured in the richest country in the world. It didn't have to be this way. Kennedy has been a senator for 46 years and sat on powerful committees. If he'd had the balls and the moxie to fight continuously and ruthlessly to pass the Kennedy-Griffiths bill this country wouldn't be on the brink of a massive health care meltdown. His bill, proposed in 1971, would have created a comprehensive, national health insurance system and abolished the private insurance industry. Instead, Kennedy gave up and threw his support behind tepid, incremental reforms that allowed the parasitic insurance industry to thrive and have brought us to the point of disaster in 2009. He championed the draconian mandate model in his home state of Massachusetts that punishes people who don't buy insurance and has enriched the already rich health insurance corporations. So sorry Ted, you sold out the cause of your life and the legacy you so arrogantly pursue now will reflect that.

An article in the New York Times speculated because Kennedy has a brain tumor, the covert meetings have an added sense of urgency. Oh really? Because he has a brain tumor?  Not the patients that according to a study in 2007 titled "Nobody Can Afford a Brain Tumor" face financial ruin? More than 90 percent of those surveyed had insurance. Ah, there's the rub. Those patients had private insurance plans. AHIP tries to avoid covering cancer patients, they're "high utilizers" of health care services (imagine that, wanting to receive treatment for cancer!) and that cuts into profit margins. Ted can afford a brain tumor because he has single-payer health care guaranteed for life, courtesy of the Federal government. Our tax dollars pay for his health care so he'll never have to face medical bankruptcy.

more.....

by suzieg 2009-02-23 08:15AM | 0 recs
Re: Bad memories and a call to action on health ca

Long time lurker, first comment.  I am sitting here typing as an iv drips antibiotics into my arm.  Similar story, only my sinus infection did form an abscess, and it did it in my brain (as your doctor warned).  Fortunately, I was diagnosed before I had seizures or had serious permanent damage.  

My husband was laid off in December, and we had signed up for cheap, but lousy, private health care.  The day they told me I had a brain tumor (the original, and fortunately mistaken, diagnosis), we filled out the COBRA forms.  This episode (a brain biopsy, 1 week in the hospital, and at least 8 weeks or iv antibiotics 5 hours a day), has given us a new perspective on COBRA and the need for universal health care.  Nothing like seeing it from the inside to make my Republican-leaning husband see the light.

by Pokie 2009-02-23 09:28AM | 0 recs

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